In 2004, our daughter was tentatively diagnosed with WMS - I will always remember the journey home and my late-night internet search for information - there was nothing except worrying genetic publications and that is why this website exists ... so no one else ever faces that lonely search again !
These youngsters will change your life forever - but in a positive way - they bring so much joy we call them our WMS Smilers ! They are wise old souls who listen to everything around them with heightened senses and a mischievous nature.
Most of our support is done via our Warburg Micro Syndrome Facebook Group - it offers a chance to speak to other Parents with decades of practical experience. If you ask to join we will message you as soon as we can - asking a little more about your child and we would love to see a photo of your Smiler at this stage.
Warburg Micro Syndrome Research is still in its infancy - we don't know what tomorrow will bring but we are here to help you ...
We look forward to hearing from you !